Web and Local Resources

General Organizations

BEACH Center on Disability www.beachcenter.org
Dissemination Center for Children with Disabilities www.Nichcy.org
National Council on Disability www.ncd.gov
National Easter Seals Society www.easterseals.com
National Organization for Rare Disorders www.rarediseases.org
National Organization on Disability www.nod.org
PACER CENTER, Champions for children with disabilities www.pacer.org
Parents helping Parents www.php.com
Special Olympics International www.specialolympics.org
Very Special Arts www.vsarts.org

Specific Disabilities

American Association on Intellectual and Developmental Disabilities www.aaidd.org
American Speech-Language-Hearing Association www.asha.org
Autism Society of America www.autism-society.org
Brain Injury Association www.biausa.org
CHADD Children and Adults with ADD www.chadd.org
Council for Exceptional Children www.cec.sped.org
Council for Learning Disabilities www.cldinternational.org
Department of Health and Human Services www.hhs.gov
Hydrocephalus Association www.hydroassoc.org
International Dyslexia Association www.interdys.org
Learning Disabilities Association of America ldaamerica.org/
National Alliance for the Mentally Ill www.nami.org
National Center for Learning Disabilities www.ncld.org
National Center on Stuttering www.stuttering.com
National Down Syndrome Society www.ndss.org
The Epilepsy Foundation of America www.epilepsyfoundation.org
United Cerebral Palsy Associations, Inc. www.ucp.org
The Epilepsy Foundation of America www.epilepsyfoundation.org

Educational Resources

Assistive Technology www.closingthegap.com
Connecticut State Department of Education www.sde.ct.gov/sde/
Inclusion Press Homepage www.inclusion.com
National Association of State Boards of Education (NASBE) www.nasbe.org
National Parent Network on Disabilities (NPND) www.npnd.org
Rehabilitation Engineering and Assistive Technology Society of America www.resna.org
US Department of Education www.ed.gov


School-based groups, such as the PTA and Special Education Parent Reps, cannot provide the disability-specific support we often need. Following is a list of local support groups, recommended by PTA Council SpedParents Committee members.


CT Autism Spectrum Resource Center www.ct-asrc.org
CT FEAT (Families for Effective Treatment of Autism) www.ctfeat.org
Autism Society of Connecticut www.autismsocietyofct.org

Learning Disabilities

SmartKids with Learning Disabilities www.smartkidswithld.org
Recording for the Blind & Dyslexic www.rfbd.org
CACLD (CT Association for Children with Learning Disabilities) www.cacld.org
LDACT (Learning Disabilities Association of Connecticut) ldaamerica.org/

Down Syndrome

CT Down Syndrome Congress www.ctdownsyndrome.org

Tourette Syndrome

CT Tourette Syndrome Association www.tsact.org

Hearing Impairment

Alexander Graham Bell Association for the Deaf & Hard of Hearing www.agbell.org

Helpful to many families is Pizza Moms, an informal information sharing & support group. They meet for supper at 7:30 pm the first Tuesday of every month, at Post Corner Pizza in Darien. Contact Nanette Jordan at nanette618@gmail.com. http://sites.google.com/site/pizzamomssite/

Bookmarked as a favorite website should be Spednet - www.spednet.org. Locally based and regularly updated with meetings and events, it is an excellent resource.

Lastly, please let us know about organizations that have been useful to you, we'd like to include them on this list. Contact yourPTA Special Education school representative, or email us at SpedParents@Westport.k12.ct.us.